Agenda
There is a pre-conference tutorial on December 6.
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9:00-9:30 a.m.
Welcoming RemarksConfirmed:
- Steve Downs, Robert Wood Johnson Foundation
- David Lansky, Markle Foundation
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9:30-10:15 a.m.
Opening KeynoteConfirmed:
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10:15-10:30 a.m.
Break
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10:30-Noon
Consumer Empowerment Use Cases: Moderated DiscussionThe Department of Health and Human Services is supporting efforts to demonstrate how Americans could maintain and share medication and registration information online. This session will discuss the emerging strategies to achieve this goal, the challenges it raises, and how it fits in with broad availability of personal health records (PHRs).Moderator:David Lansky, Markle FoundationConfirmed:
- Kelly Cronin, Office of the National Coordinator for Health Information Technology
- Kathleen Mahan, SureScripts
- Rose Marie Robertson, American Heart Association
Improving Access and Protecting Privacy: Moderated DiscussionPolls show that many Americans would like to have access to their health data online. Yet many Americans express concern about increased risk of identity theft and job or insurance discrimination as their sensitive health data begins to move across the Internet. Do federal and state rules go far enough? What are the key privacy issues that need to be addressed and how are the major initiatives addressing them?Moderator:Janlori Goldman, Health Privacy ProjectConfirmed:- Jodi Daniel, Office of the National Coordinator for Health Information Technology
- Harriet Pearson, IBM
- Alan Westin, Columbia University
Involving Diverse Populations: Moderated DiscussionThe increasing emphasis on digital health information and various electronic tools could make existing health care disparities worse. What are the risks, and what approaches are being deployed to ensure that every American can get the best possible care and fully participate in that care?Moderator:Steve Downs, Robert Wood Johnson FoundationConfirmed:- Cynthia Baur, Centers for Disease Control and Prevention
- Adolph Falcón, National Alliance for Hispanic Health
- Francesca Gany, New York University Medical Center
- M. Chris Gibbons, Johns Hopkins Urban Health Institute
Latest Consumer Technology Innovations and Business Models: Moderated DiscussionUntil recently, consumerism has not been a characteristic of the health care industry. This session will consider the business models that drive personal health technology innovation.Moderator:Josh Lemieux, Markle FoundationConfirmed:- Ted Eytan, Group Health Cooperative
- Ed Fotsch, Medem
- Peter Neupert, Microsoft
- Noon-1:30 p.m.
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1:30-3:00 p.m.
Consumer Input in Health Data Exchange: Moderated DiscussionIn more than 100 communities, health care providers and others are collaborating to create health information exchange networks. How should consumers and their interests be represented in the design of such networks? What are the best practices seen so far?Moderator:Susan Christensen, Agency for Healthcare Research and QualityConfirmed:
- Vicki Estrin, Tennessee Volunteer eHealth Initiative
- Lisa Fenichel, Health Care for All
- Art Levin, Center for Medical Consumers
User-Centered Design: Moderated DiscussionGreat consumer products like the iPod or cell phone fit naturally with our needs and skills. What has been learned about developing personal health information tools that are easy to use and produce quick benefits?Moderator:Steve Downs, Robert Wood Johnson FoundationConfirmed:- Patti Brennan, University of Wisconsin
- Stefanie Fenton, Intuit
- Holly Massett, National Cancer Institute
A Networked PHR: Moderated DiscussionThis panel will outline a vision of a consumer-centric information world in which the individual person is the hub of his or her information universe, and each of us can manage our own information tools.Moderator:David Lansky, Markle FoundationConfirmed:- Omid Moghadam, Intel
- James Ralston, Palo Alto Medical Foundation and Group Health Cooperative
- Paul Sheils, Aetna
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3:15-4:00 p.m.
Afternoon KeynoteConfirmed:Mark McClellan, former administrator of Food & Drug Administration and Centers for Medicare & Medicaid Services
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9:00-9:10 a.m.
Welcoming RemarksConfirmed:David Lansky, Markle Foundation
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9:10-9:30 a.m.
New ResearchConfirmed:Michael Perry, Lake, Snell, Perry and Associates
- 9:30-10:15 a.m.
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10:15-10:30 a.m.
Break
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10:30-Noon
Role of CMS and Other Payers: Moderated DiscussionIn the United States, health care payers often have the most complete information concerning a given individual's care. This information includes the patient's demographic information, diagnoses, medications, etc. This session will describe how some payers are providing this information directly to members. The discussion will also consider what issues are raised by these new payer-based initiatives.Moderator:Helen Burstin, Agency for Healthcare Research & QualityConfirmed:
- Archelle Georgiou, United Healthcare
- Bill Rollow, Centers for Medicare and Medicaid Services
- Gerry Shea, AFL CIO
Future of PHRs: Moderated DiscussionWhat are the most desirable or highest-impact features in PHR tools today, and what is the outlook for the future? Learn what patients really use, what they really want, and what developers are planning on offering next. Also hear from leading national thinkers about the stages of transformation they expect to see play out in the coming decade.Moderator:Josh Lemieux, Markle FoundationConfirmed:- Eric Dishman, Intel
- Phil Marshall, WebMD
- Peter Reuschel, InterComponentWare
- Anna Slomovic, Revolution Health
Understanding the VA and VistA: Moderated DiscussionThe Veterans' Health Administration is our national laboratory for developing innovative approaches to quality, patient safety, and the use of health IT. In the last year it has made a number of new tools available to veterans to access their medical records and medication lists. What has been learned, and where will they go next?Moderator:Lygeia Ricciardi, Markle FoundationConfirmed:- Ronald Brimmer, VA patient
- David Douglas, Portland VA Medical Center
- Virginia Price, My HealtheVet
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Noon-1:00 p.m.
Lunch KeynoteIntroduction:Carolyn Clancy, Agency for Healthcare Research and QualityConfirmed:Harry Cayton, Department of Health (UK)
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1:00-1:30 p.m.
Break
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1:30-3:00 p.m.
Successful Consumer-Clinician Health IT Interactions: Moderated DiscussionMost Americans rely on their doctors to interpret health information and to help make important decisions. How are emerging information technologies enhancing the collaboration between patients and doctors and leading to better health outcomes?Moderator:Matt Wynia, American Medical AssociationConfirmed:
- William Huddleston, Patient
- George Peredy, Kaiser Permanente
- Danny Sands, Cisco Systems
When HSAs Meet PHRs: Moderated DiscussionAdvocates of consumer-directed health plans and health savings accounts (HSAs) argue that consumers will be eager to get and manage their health information as they come to bear more of their costs of care. Is this coming true? Is it a good thing?Moderator:Gary Claxton, Kaiser Family FoundationConfirmed:- David Merritt, Center for Health Transformation
- Michael Parkinson, Lumenos, Inc.
- Alison Rein, National Consumers League
Latest Research: Moderated DiscussionUltimately, PHRs are meant to help people improve their health. What evidence is there so far that these approaches can make a difference? What have we learned about the barriers to effective implementation and adoption?Moderator:David Ahern, Health eTechnologiesConfirmed:- Corey Angst, University of Maryland
- Eric Dishman, Intel
- Steve Ross, University of Colorado Health Sciences Center
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3:15-4:00 p.m.
Closing RemarksConfirmed:
- Harry Cayton, Department of Health (UK)
- Esther Dyson, C/NET Networks
- Linda Golodner, National Consumers League
- Robert Kolodner, Office of the National Coordinator for Health Information Technology
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9:00-11:30 a.m
Personal Health RecordsThis session will provide beginner’s level understanding of PHRs and how they may be distinct from or interact with clinician-focused electronic health records (EHRs). The panelists will present how people use PHRs today as well as the barriers to collecting data from the many sources of personal health information.Confirmed:
- David Lansky, Markle Foundation
- Josh Lemieux, Markle Foundation
- Danny Sands, Cisco Systems
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Noon-2:30 p.m.
NetworksThis session will provide beginner’s level understanding of efforts to build a National Health Information Network (NHIN) and regional health information organizations (RHIOs). It will orient attendees to the consumer empowerment use case currently in progress under a federal contract with several technology companies.Confirmed:
- Gerry Hinkley, Davis Wright Tremaine, LLP
- Lygeia Ricciardi, Markle Foundation
- Clay Shirky, Markle Foundation
- Micky Tripathi, Massachusetts eHealth Collaborative
- Jon White, Agency for Healthcare Quality and Research
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3:00-5:30 p.m.
PoliciesThis session will provide beginner’s level understanding of key policies necessary for electronic health information exchange, such as security, privacy, authentication, and authorization.Confirmed:
- Paul Feldman, Health Privacy Project
- Mark Frisse, Vanderbilt University
- Melissa Goldstein, George Washington University